JERRY Clark from Wadebridge has embarked on a challenge to raise vital funds for ME research. He has already completed a series of cycling challenges around the South West and is now well into his challenge to walk the Cornish coast path.
Myalgic Encephalomyelitis (ME) is a common, serious, complex and sometimes fatal, physiological disease.
In Cornwall alone there are many children far too unwell to go to school who are losing years of their education. There are also thousands of adults bed-bound, suffering severe symptoms and not receiving any help or treatment. It is a really big group, which has received far too little attention.
Some patients are able to do a little activity on occasion, but nevertheless suffer extreme symptoms all of the time. The severity of these symptoms is often misunderstood and seriously underestimated by non-sufferers, partly because ME is an “invisible disability”.
More than sixty symptoms can occur in this disease, all of which can be worsened drastically by the slightest physical or mental activity, and it can often last for decades, or be life-long.
Guided by world-renowned geneticist, Ronald W Davis, PhD, the Open Medicine Foundation has brought together top experts from a variety of fields for a bold and new research project, called the “End ME/CFS project”. Their goal is to unlock the mystery of ME and end the suffering caused by the disease. They have made some great leaps in understanding the condition already, but as always, this field is desperately underfunded.
To be part of this historic effort to unlock the mystery, find a cure and give hope to millions of desperate patients worldwide, sponsor Jerry at: www.justgiving.com/crowdfunding/jerryforme-pt2
Jerry said “No donation is too small. If everyone in the area gave £1, between us we could have a really good donation to give to research, and it would show a real support for all those in our community who are suffering the devastating reality that is ME.”